Who cares for the members of our society: the elderly, the frailest, or those who can not care for themselves due to physical or mental disability?
It's a job too big for one person. That is where society is supposed to step in - the combined power of us all. But too many times, it doesn't work.
Depending on ourselves, or on family, or friends, is a nice philosophy until you have to put it into action. A person who embarks on caregiving without support will, sooner or later, be a person burning out.
If there is anyone in the world right now I would want to have write a guest post for my blog, it would be a woman who had started a blog about her particular situation.
The author was a young woman whose parents are dead, and so the responsibility for caring for her older sister rests on her. Her sister had severe seizures as a young child, which caused major damage to her brain. The sister, developmentally, is about the age of three. She has other issues, too, as a result of this disability.
When the young woman sought respite and housing help from the State she lives in...well, it became an absolute nightmare. She's not looking for a handout. She is looking for some respite. She has taken responsibility for her sister, as have others of us who have people with disabilities in our lives.
It's no surprise to me, and no surprise to anyone who is a sib or a sib-in-law of someone who is physically or developmentally disabled, that she must wade through incredible bureaucracy with rules that make absolutely no sense. She must deal with agencies who have no idea of the needs of the people and family they are "serving".
Just think of all the people without loving families who are adrift in that system.
But that isn't what I am blogging about today. Rather, what I am blogging about is what happened to that young woman's blog.
She had many comments on her first post - which is going to be her last post, because she had to take the blog down. Let's just say some of the comments were not friendly.
This was actually one of my concerns when I decided to spend part of the month blogging about my brother in law, who has a developmental disability called autism.
Yes, there are those who hate out there, and they just love to deposit their droppings of hate anywhere it is convenient. They hide in the anonymity of the Internet. Or, it could be that her blog was visited by people who hate those with disabilities. To them I say: being disabled is one minority group that anyone can enter into at any moment. All it takes is, oh, a car accident. Or a stroke. Or cancer. Or the bite of a tick. Or being bitten by the wrong mosquito. Or an injury that gets infected by the wrong bacteria. And then they will be looking at life from the other side.
What you give, you get. Life is an echo.
Karma can be a bitch.
I hope that young woman continues to write, somewhere, somehow. She has a wonderful voice, and it deserves to be heard.