Back in 2011, I wrote the following blog post. Both the people I
blogged about below have since passed away due to their cancers. One, a
childhood friend, would have turned 65 yesterday.
In her honor, I repeat the blog post I wrote after she called me to tell me of her diagnosis.
I rarely write political posts, but I felt this was appropriate this week, as the Senate ponders major changes in health care.
She loved her roses so much, I will add one to this blog post in memory of her.
The Country of Cancer
This has not been a good few weeks for a couple of people I know.
Without going into any kind of specifics, in the past week, I have found
out that a friend I have had since childhood, and someone I've known
locally for a number of years, have cancer. In one instance, the
"patient" knows the cancer will be fatal - the question is when. For
the other person, that "patient" is in the middle of testing to find out
the exact details. The question for that person will be if it was found
early enough because that cancer does not have a high survival rate.
Both of these people are highly educated - one has a masters degree. The
other worked at one time in the medical field. Both are taxpayers.
One is a reader of this blog.
I do not like to get political in this blog, but I am going to make an
exception today. And I am going to run a bit longer than I normally do.
Please bear with me.
It takes a village to support someone with cancer, and our country is doing a horrible job of it.
You can have the best of insurance and still find yourself in the
position of trying to pay overwhelming medical bills. If you don't have
"Cadillac" insurance, that old Buick insurance isn't going to get you
very far.
What your caretaker(s) are going to end up with is an overwhelming pile
of paperwork. There are programs to help pay the bills out there, and
those programs are going to require everything short of your firstborn
son. I'm not talking government programs here necessarily - I am
talking nonprofit programs for co-pay relief, charities, programs run by
the pharmaceutical company, programs run (perhaps) by where you are
receiving treatment.
Government? Well - there's the Department of Health and Human Services
and Social Security, too. (and some people want to abolish them, don't
they?) There's Medicare. Just as a reminder, Medicare is a program of
our Federal Government.
Need assistance? You'd better have your income tax returns, your
insurance card(s), your checking account statements, your savings
account statements, your pay stubs, and about 50 or so other things (or
so it will seem), all at the ready. Make lots of copies because you are
going to need them. Stock up on stamps. Hope you have a decent
computer, and lots of time on your hands when you don't feel like
absolute crud.
The caretaker and the cancer patient must struggle to pay those bills
while juggling (maybe) a job, (definitely) either chemo, radiation, or
both, and lots of issues. Sounds like a job for the son or daughter of
Superman. If they are only human, and fallible, they are in trouble.
Do you know any of the children of Superman? I don't.
Suddenly a caretaker? There are federal job protections but we know how
that can work, depending on how decent your employer is. Cynical? I
personally know someone who was a caretaker for her father, and lost her
job because of it. The person wasn't a resident of New York State but
she could have been. It does happen.
We have a seriously broken system. We expect people to do all these
things while fighting a dread illness. Fighting that illness should be
the first priority. Financing that struggle should not be part of it.
But too many times, it is.
It hurts, but in our holiday season, it hurts more. In an area
recovering from a natural disaster like we are here in upstate NY, it
hurts even more.
In the United States, we call ourselves "the greatest country in the world".
But, they and the people who care for them can rant all they want, but
that cancer patient and his/her family needs help and ranting won't (so
to speak) pay the rent.
So they will buckle down like so many others have done before them, and
walk that path of nails. If they are lucky they will have a lot of
support of family and friends. But not everyone has that. There are
too many cracks to fall through for the citizens of this "greatest
country of the world".
Become politically active, you say? It's hard to advocate for change when you are in a survival situation.
Observe it well. Educate yourself. Unless things change, the next time
this dread disease knocks, one of us bystanders may be answering that
door.
So sad that this is just as true in July of 2017 as it was in November of 2011.